I've read The Spirit Catches You and You Fall Down (on the recommendation from someone in my last post about this), and it was IMMENSELY helpful. But, now, I'm looking more for details of what epilepsy (specifically temporal lobe, but anything would be helpful) is like as a disease--treatment, prognosis, and day to day living.
I've been googling things like "temporal lobe epilepsy children", but most of what I'm getting is either general overviews (I think already I have a pretty good grasp of what TLE is in a very general sense) or abstracts of articles I can't access.
And, as long as I'm asking for book recommendations, I could also use more books about social work and foster care, specifically in response to medical conditions. (The family can't/won't seek medical care for the kid in the book, so the government gets involved. It's not set on Earth, but I figure finding out how other governments handle it would be helpful.) I probably can't beat The Spirit Catches You and You Fall down for sheer relevance, but more is always better.